The American Psychiatric Association (APA) is responsible for issuing the Diagnostic and Statistical Manual of Mental Disorders (DSM). The APA is developing a new version of the DSM, the DSM-5 and is currently holding the second round of public review. The DSM-5 update could have profound implications for ME/CFS patients. Your input is needed before public review is closed on June 15 - Coalition announcement
The proposal and why this is important to you:
Among other changes, the DSM-5 proposal includes the establishment of a new category called Complex Somatic Symptom Disorder (CSSD). The criteria for a CSSD diagnosis include somatic symptoms that last more than 6 months and significantly disrupt life combined with the doctor’s assessment that the patient has a disproportionate concern about the medical seriousness of his symptoms. The guidelines also include recommendations of Cognitive Behavior Therapy (CBT) and antidepressants as the appropriate therapies.
CSSD could prove disastrous for the fibromyalgia patient and for patients with other diseases like ME/CFS, Gulf War Illness and IBS that are misunderstood, misdiagnosed and mistreated by the medical community at large. For doctors who view the fibromyalgia patient as ‘just depressed’, it will be a small leap to decide that the patient has “disproportionate and persistent concerns about the medical seriousness of one's symptoms” and, as a result, inappropriately diagnose CSSD. Once diagnosed with CSSD, the implications for diagnosis, treatment, disability and insurance will be profound.
What you can do:
The Coalition 4 Fibromyalgia has sent a response to the APA on this issue, which you can find here. The DSM-5 team also needs to hear from as many of you as possible about your concerns. Feel free to draw from the Coalition 4 ME/CFS letter for your own comments. Remember, this must be done by June 15, 2011.
Here are the steps to follow to provide your input:
1.Register on the DSM-5 web site to make comments. The “Register Now” site is in the upper right hand corner of the DSM-5 home page. You will receive a confirmation email with a temporary password that you will have to click on to complete registration. If you have registered previously, you should still have an account and can log in in the same box.
2.Provide your comments directly on the CSSD page. It is probably easiest to create your comments outside of the interface and then copy them in. Bolding and other formatting appear to be lost when you copy your document in.
Thank you
Coalition 4 Fibromyalgia
Call To Action:
DSM-5
Note: Deadline for DSM-5 comment has been
extended to July 15th
